CDH1 Mutation: What Makes Me So Special?
    CDH1
    July 16, 2019

    CDH1 Mutation: What Makes Me So Special?

    A CDH1 mutation. That’s what makes me special. Unlike most other 33-year-olds, I have been diagnosed with two different types of cancer in less than two years. These cancers don’t recognize economic status, lifestyle, or other health…
    Living Without A Stomach: My Favorite Foods To Eat
    Stomachless Lifestyle
    June 23, 2019

    Living Without A Stomach: My Favorite Foods To Eat

    Living without a stomach is not always easy, but it is easier than you may think. Generally, I eat whatever I want. Though I tend to focus on foods that are easy to digest, calorie dense, and…
    CDH1 Research: Videos, Papers, and Other Sources
    CDH1
    July 1, 2019

    CDH1 Research: Videos, Papers, and Other Sources

    CDH1 research is a relatively new area in certain respects. In 1999, a medical researcher in New Zealand named Dr. Parry Guilford and his colleagues discovered the connection between CDH1 mutations and cancers of the stomach and…
    CDH1: CDH1 Care Teams For The Support of Mutation Carriers
    CDH1
    June 30, 2019

    CDH1: CDH1 Care Teams For The Support of Mutation Carriers

    CDH1 mutation carriers need a large support team. Finding out that you have a CDH1 mutation is scary and complicaled news. For CDH1 carriers who find out because they have stomach cancer or breast cancer, the news…
    CDH1 Gene: Explaining the Role of the CDH1 Gene
    CDH1
    June 29, 2019

    CDH1 Gene: Explaining the Role of the CDH1 Gene

    The CDH1 gene provides the genetic code for producing epithelial cadherin, a protein critical for cell adhesion, tumor suppression, and several other functions.  Epithelial cadherin, also called E-cadherin, is a protein found in epithelial cells. Specifically, e-cadherin…
    Can you live without a stomach? Some history for CDH1 mutants.
    Stomachless Lifestyle
    June 22, 2019

    Can you live without a stomach? Some history for CDH1 mutants.

    Can you live without a stomach? Great question. People have been asking it since at least the early 1600s. Despite that being over 400 years ago, I believe it’s safe to say that total gastrectomy is a…
    Eating Without A Stomach: Help Your Skin, Hair, and Nails Thrive
    Stomachless Lifestyle
    August 7, 2019

    Eating Without A Stomach: Help Your Skin, Hair, and Nails Thrive

    Eating without a stomach can present challenges. Due to changes in the body’s ability to absorb nutrients after surgery, this is especially true when it comes to making sure you have an adequate intake of certain vitamins…
    CDH1 Gene Mutation: My Family’s Story
    CDH1
    June 29, 2019

    CDH1 Gene Mutation: My Family’s Story

    A CDH1 gene mutation runs in my family. We discovered it because my mom was diagnosed with stomach cancer. Subsequent genetic testing confirmed she inherited from her father a CDH1 gene mutation that is associated with stomach…
    Prophylactic Total Gastrectomy: When Should I Have It?
    Total Gastrectomy
    June 18, 2019

    Prophylactic Total Gastrectomy: When Should I Have It?

    Prophylactic total gastrectomy. After deciding whether to have one, you will need to decide when to have it. For many medical conditions, a sense of urgency for surgery exists because of existing symptoms. In those instances, the…
    How do you live without a stomach? My eating guidelines.
    Stomachless Lifestyle
    June 23, 2019

    How do you live without a stomach? My eating guidelines.

    How do you live without a stomach? People ask me this almost every time I tell them I don’t have a stomach. Frankly, I usually don’t know how to answer this question. That’s because I don’t know…

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